Bryan received irinotecan (CPT-11) today although his bilirubin is hanging around 3.7. He said today is the best he has felt in about a week. His blood pressure has been very low this past week. We have increased the dosage of the medication which increases blood pressure and have added potassium to increase electrolyte levels. For those who don't attend our church, Bryan was not in the pulpit on Sunday, he didn't even go. The hiccups kept him awake all night Saturday, and then with the low blood pressure, he knew it would be best to rest rather than preach.
I guess he is saving up energy for our annual church camping trip. He was writing his messages for the upcoming event this evening. It helps to have small goals as we walk this journey. After the camping trip, we await Josiah's 14th birthday at the end of October, then Bryan's birthday in November. I know he would like to eating again by Thanksgiving. If the chemo can reduce the tumors to open the blockage then there is a very real possibility. Pray, pray, pray!
His daily goals are related to exercise. It has been wonderful to see his slow, but sure progress. We started walking 5 minutes a day last week. The first time out he made it halfway to McKinley and back. The next time all the way to McKinley and back. Yesterday, we walked to McKinley and back, then to "I" street and returned home for a total of 15 minutes! We didn't walk today due to a long day at chemo (9:00-5:30). Looking forward to a possible jaunt around the block in a day or two. Small goals, it's not a race, just movin' the ol' bod'.
I close with the Psalm Bryan shared for family devotions tonight:
Evening Prayer of Trust in God
Answer me when I call O God of my righteousness!
You have relieved me in my distress;
Be gracious to me and hear my prayer.
O sons of men, how long will my honor become a reproach?
How long will you love what is worthless and aim at deception? Selah.
But know that the Lord has set apart the godly man for Himself;
The Lord hears when I call to Him.
Tremble, and do not sin;
Meditate in your heart upon your bed, and be still. Selah.
Offer the sacrifices of righteousness,
And trust in the Lord.
Many are saying, "Who will show us any good?"
Lift up the light of Your countenance upon us, O Lord!
You have put gladness in my heart,
More than when their grain and new wine abound.
In peace I will both lie down and sleep,
For you alone, O Lord, make me to dwell in safety.